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My day normally starts with about 20 minutes of trying to stretch out my muscles and have them functioning normally again. Then I have to pick up my little girl from her bed, and that can be a painful experience. After that its time to change her diaper, and that is also a huge problem for me as my fingers normally are not working properly. Fortunately my daughter has learned already to be patient with me. After about half an hour its time to try out clothes and see if its going to be a good day or a bad one. A bad day is a no tight clothes day. Then its breakfast time but normally I cant eat breakfast due to stomach problems also caused by my fibromyalgia. Then the day goes on. If I have the strength I will try to go out and do the shopping and also take out my kids. The worse thing about fibromyalgia is that one get so tired. The pain can be so hard that nothing works and even if you have had a good nights sleep, you can wake up feeling as if you have never slept at all. It takes control over every little thing you like to do. One day I have all the strength I can ever use and the next day I have no strength at all. Fibromyalgia takes all the good in you, and makes you feel horrible if you do more then your body can take. I remember once I was at a dance, felt pretty good that evening and had no pain whatsoever. The day after the dance I could not get out of bed, I had to call for help. I have also had to have home assistant, and help with almost everything for some periods of my illness. Its been so bad that I havent even been able to take my kids out to play. The weather is also a big problem for almost everyone with fibromyalgia.. For me that means that when the temperature is between 0-15 degrees Celsius, Im in severe pain. Those days, I can do hardly anything, and that means for me about 6 months a year. There are a few things that you, who dont have this illness can do: 1. Remember that even if someone has fibromyalgia, it doesnt mean you can see it. We have no evidence on our bodies that prove our illness and too often we get to hear that we are lazy, and How can you be ill, it doesnt show. Those words hurt. Because we have often had to fight a battle with our doctors to make them realize that we have fibromyalgia and prove it to far too many people. 2. Also think about the fact that sometimes even a soft touch can hurt, so dont pat us on the back saying youll get better!. Its an illness that is there for life. 3. Dont make demands on us, because what we can do today, we might not be able to do tomorrow. This is just a little about fibromyalgia and I will probably write much more about it. |
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