Genetic Testing Advisory Committee

The Secretarys Advisory Committee on Genetic Testing (SACGT) of the Department of Health and Human Services (DHHS) held its first meeting in June. Chaired by Edward McCabe (University of California, Los Angeles), the 13-member committees task is to help DHHS formulate policies on the development, validation, and regulation of genetic tests, particularly DNA-based diagnostics. SACGT was formed last year on the recommendation of the NIH-DOE Task Force on Genetic Testing.

At the meeting, the committee set up working groups to address the adequacy of governmental oversight of genetic tests and to plan how to gather public perspectives. Members also identified nine broad areas that will require the committees consideration over the next 2 years. These include education, access to testing, diversity issues, stigmatization, rare disorders, introduction of tests into clinical practice, use of evidentiary-based models and outcome assessments, economic issues in genetic testing and oversight, and direct marketing of tests.

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Genetic Testing Advisory Committee

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