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Catalyzed by the American Medical Association, the American Nurses Association, and the NIH National Human Genome Research Institute (NHGRI), the coalition consists of leaders from more than 100 healthcare professional organizations, consumer and voluntary groups, government agencies, industry, managed-care organizations, and genetics professional societies. The coalitions goal is to provide an organized, systematic, and national approach to the provision of genetic education for all healthcare professionals. After the steering committee was organized in July 1996, the coalition held a 1-day meeting of the full membership on March 10, 1997. Top priorities identified by NCHPEG members included the following: * Development of a comprehensive, Web-based genetics information center; * Development of a core curriculum in genetics for health professionals, to serve as a template that can be modified according to discipline; * Integration of genetics into continuing education, certification, and licensure examinations; and * Development of a model tool to elicit comprehensive, multigenerational family histories. The coalition has begun to address these priorities, and interdisciplinary working groups have been or are being formed to focus on each area. One major activity has been the establishment of an NCHPEG Web site, which currently provides basic information about the coalition and its membership (http://www.nchpeg.org/). The site is being expanded to serve as a coalition communications hub with links to member organization Web pages, an NCHPEG newsletter, and high-quality genetics information sites of interest to healthcare professionals. Plans are under way to develop a database of current and planned genetics education activities and materials for healthcare professionals. The coalition also is evaluating organizational structure models appropriate for NCHPEG and identifying critical procedures necessary for effective and efficient operations. |
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